


Dear Abby >> I have hemifacial spasm (HFS), a relatively rare disorder characterized by random and uncontrollable spasms on one side of the face. HFS can sometimes be alleviated through surgery and/or treated with Botox injections. HFS makes social contact challenging when the face contorts for no apparent reason, sometimes with accompanying speech slurring.
In my case, surgery was unsuccessful, and my only option is Botox, which leaves one eye wider open and my mouth unable to move naturally or smile on one side. I’m learning to accept this facial asymmetry as my new normal, but I’m not there yet.
I’m self-conscious about having my photo taken, but camera-wielders insist and persist. Can you help me with a response I can use to those photo-takers who refuse to take no for an answer, or worse, tell me to “just smile,” something I can no longer do?
— Self-Conscious in the Midwest
Dear Self-conscious >> I have several suggestions about your problem. The first is that not everyone is equally talented in administering Botox. Is the person administering yours a dermatologist? Whether the answer to this question is yes or no, it might benefit you to consult more than one.
Because you are sensitive about having your picture taken, point out to the picture-taker that either you prefer not to be photographed, and why, or explain that you WILL NOT be smiling for obvious reasons.
Another thought: Consider positioning yourself so your more photogenic side faces the camera.
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